Today we had an appointment with a new doctor for a second opinion. We saw Dr. Marion Walker at Primary Children's, we have been told by Ella's pediatrician that Dr. Walker is the best neurosurgeon there.
I was going into this appointment with the mind set that if something bad is said to try and keep calm. I was becoming pretty anxious waiting for the doctor. I paced the room with Ella and finally he came in. He asked a lot of questions about Ella.
How is she eating?
How is she sleeping?
Is she learning to do the things she should as this age?
My response, She is right on schedule.
Shes alert, She sometimes makes oooo sounds, Smiles constantly, Holds my hand up to her chest as she sleeps, Always has to make sure where I am and that I havent left the room. She started kicking her toys in her bouncer, and lately she has been holding her head up pretty good by herself.
As far as eating. Shes doing pretty good about 3oz every 2 hours. Sleeping she is sleeping all night with only 1 or 2 feedings.
The doctor checked her head and said that everything feels normal, no bulging, her head is measuring small, no swelling.
He said that she doesnt have Hydrocephalus and really thinks that she would have had it by now.
Dr Walker said that when baby's are born with fluid on the back of the brain (DWS) and they are born with no symptoms, they may never have symptoms. He said he would like to see Ella in 6 months to reevaluate and at a year he will do a MRI and make sure that everything looks good. Until than he recommended taking Ella to her pediatrician to follow up every month and have her head measured, just to keep an eye on her.
This is very positive information, we are excited for what we have been told today. We know there is a small percentage that things could change. But at this very moment we are happy that things are looking up for Ella and she may be able to live a normal life.
I want to thank everyone for their love, support and prayers. All your love and positive remarks have given our daughter hope of a new life.
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