As of right now.... Ella is very alert, shes staying away more during the day. She looks directly in to our eyes and smiles at us. I will talk to her and say Hello, are you going to smile for me pretty? She lights up and gives me the biggest smile with the cutest dimples. I decided that since she is so alert to put a hanging toy in her car seat for her to look at. The toy makes music and it helps so much with her being fussy in the car. I also attached a mirror to the car seat. She enjoys looking at it, a few days ago i even noticed her smiling at herself in the mirror. Ella has been trying really hard to roll over on her back. She accomplished the rolling over on her side a week ago. She is also starting to find her voice. I have been trying to get it on video, but by the time I get the video ready she has decided to stop. Ella has also started to suck on her hand. When I dont get her binkie to her fast enough, she puts her hand in a fist and puts it in her mouth. I have also noticed that she uses her arm to suck on too. Ella has started to hear a lot more. I notice that when shes asleep she has become a light sleeper. If she hears Brayden talk or scream or if Baxter our dog barks it wakes her up. She has even woke up to the voice of Matt talking. So we are working at lowering our voices and trying to make it a quite environment for her.
Update on her health. I received a call directly from Ellas Doctor. I am amazed at how sweet and caring her regular doctor is. He always makes the call, he never has a nurse or someone else make his calls. I have never had a doctor care so that much. He upped Ellas Zantac to see if maybe she just needed an increase of her medication to make her feel better. He also suggested to start doing things for colic in case she is also suffering from that. He suggested that during the day to try and keep things quite, curtins shut, and tv on low. He is wondering if shes getting too stimulated in the day and its making it hard for her to calm down in the evening. So we are going to try the higher strength of Zantac and try to do things in the day to make it not so loud for her. We go to the doctor on the 23rd to get a wellness visit and will review it than.
On Sept 4th we have our appointment with the neurosurgeon to get a second opinion on Ella. We feel that we didnt get enough information from the previous neurosurgeon. Hes one of those doctors that uses DR terms and doesnt explain it in people terms. So we didnt get very far with him. I am hoping this doctor can explain things better to us and make us understand Ellas condition.
I am going to keep this blog updated hopefully on a daily basis. I am hoping that as Ella grows that going back on the blog can help us in her future, and also to raise awareness of her disability.
Thank you for all of you that read, I appreciate all the support we receive from Family and Friends.
My parents in all have been very supportive as far as watching the children and helping when they can. I really appreciate them and their love for there grandchildren. Marian, Brayden and Ella enjoy their grandparents and their love to them. I know in my heart that my children will grow up like me knowing how much their grandparents loved them and how much they cared about them. Makes me miss my grandparents, I had so much fun with them. I miss those days of having sleepovers at their house and waking up to my grandpa making his fantastic Eggs and the smell of coffee. My grandma feeding their yellow bird and just the love they had for me. I miss you Grandma and Grandpa! I am happy I have the memories and I am able to share them with my kids as they grow up.
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