Dr Brockmeyer said that Ella does have fluid on the back of her brain. He diagnosed her with Dandy Walker Malformation. He said as of right not her head is just a little bigger than normal, that we will not need a shunt right now. He said we will measure again in 1 month and go from there. The doctor said that right now we wait to see how she develops. She could be normal, somewhere in the middle or in a wheelchair. We don't know right now, the best way for us to know is if she reaches her milestones. As I was driving home from this appointment I started to think of other questions that needed to be answered. I found the doctors email address and this is what I asked and what was answered by the doctor.
1. Is it possible that Ella could pass away from DWM?
Extremely unlikely
2. What types of symptoms should I call into your office about that is concerning?
Pressure symptoms, including irritability, vomiting and significant sleepiness.
3. If Ella ends up needing a shunt will this decrease the size of
her head or will she have to live with her head being bigger than
normal?
A shunt would reduce head circumference. We will try and avoid putting one in unless she absolutely needs it.
Our next appointment with Dr Brockmeyer is in September. I will be updating this blog as appointments or other important things come up.
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