Yesterday we had Physical Therapy, it has been since the first of December since we have been able to meet with the therapist. The therapist brought along with her a student.
Things seemed a little more stressful as usual at this appointment, I am unsure if it was because there was a student there learning from the PT or what.
It started off by what has Ella accomplished since the first of December. Well its hard to be put on the spot especially when you have a 2 year old trying to steal the show. But I tried to remember the best I could.... Ella has achieved the following......
1- Rolling on both directions from back to tummy, from tummy to back.
2- Batting, holding, shaking and pushing buttons on toys.
3- Takes her takes her socks off and plays with them.
4- Will hold weight when standing briefly.
5- Will pick up Binky play with it and place Binky in mouth.
6- 01/30/13 started to tuck knees under tummy in PT appointment.
To get Ella started in sitting up we are going to have her sitting in a high chair with towels on each side of her legs and let her play with her toys. We will also work on more tummy time to build her up to crawling.
I really had a hard time at this appointment, its always hard to hear that your child isn't up to speed and that she/WE need to try harder. So my cure for trying to shake it have a session of crying and then smile! Because all I can do is help Ella learn and be there for her.
No matter what is said to us I know with all my heart that Ella is doing the best she can, and that's all anyone can expect.
Thursday, January 31, 2013
Keep on smiling!
I love this quote
"When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile"
Over the last day I have been putting a lot of thought into this quote.
Back in October of 2012 I had plans with a friend I had for nearly 8 years. At the time that friend nor I knew what the next few months was going to end up like with Ella. As far as we knew everything was going to be running smoothly and Ella was just fine. The week of the plans Ella was having some symptoms which were very concerning to me. So I cancelled my plans with my friend to stay home and watch, take care of Ella. I received a message from this friend saying that it was uncalled for to cancel plans with her that she couldn't be my friend anymore. I looked back at the past 8 years and I had many of times that I would be home crying in tears because I was stood up by this so called friend. I thought to myself "she cant be friends with me, because I stayed home to take care of my daughter". The next 2 weeks became very hard with Ella, she became sicker. On November 2nd I rushed Ella to the emergency room at Primary Children's. The doctor confirmed that Ella was having pressure in her head caused by the fluid in her brain. Ella was admitted and had emergency surgery the next day. We were in the hospital for a total of 7 days, our luck continued and the next month she had an device placed into her heart for a PDA heart murmur. This was the hardest thing I had been put through in my life. My child was going through risky surgeries. I think back and know for a fact that this friend was not a true friend at all. If only she had known what Ella was going through and I as a mom. I had put money towards a foundation for her brother prior to this, because I was a caring friend and wanted to show her I cared. I put my heart out on his foundation page telling her how much I cared for her and her family and that even though I was having financial problems during that time that put money towards a great cause. I have been taught to forgive and forget. So for this quote I forgive this person and I will forget what they missed out on. Because Ella is a angel sent from heaven. We are grateful for all the love and support we have had during all the hard times we have been through and are grateful for all that helped us. I may have cried a few times over that friendship, but I have had more smiles than anything from it. Because I found out who my true friends are along the way of all of the hard times.
Thank you for allowing me to find the person I am, how strong I am and how I can smile my way through all the hard times, and a little tear along with it.
"When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile"
Over the last day I have been putting a lot of thought into this quote.
Back in October of 2012 I had plans with a friend I had for nearly 8 years. At the time that friend nor I knew what the next few months was going to end up like with Ella. As far as we knew everything was going to be running smoothly and Ella was just fine. The week of the plans Ella was having some symptoms which were very concerning to me. So I cancelled my plans with my friend to stay home and watch, take care of Ella. I received a message from this friend saying that it was uncalled for to cancel plans with her that she couldn't be my friend anymore. I looked back at the past 8 years and I had many of times that I would be home crying in tears because I was stood up by this so called friend. I thought to myself "she cant be friends with me, because I stayed home to take care of my daughter". The next 2 weeks became very hard with Ella, she became sicker. On November 2nd I rushed Ella to the emergency room at Primary Children's. The doctor confirmed that Ella was having pressure in her head caused by the fluid in her brain. Ella was admitted and had emergency surgery the next day. We were in the hospital for a total of 7 days, our luck continued and the next month she had an device placed into her heart for a PDA heart murmur. This was the hardest thing I had been put through in my life. My child was going through risky surgeries. I think back and know for a fact that this friend was not a true friend at all. If only she had known what Ella was going through and I as a mom. I had put money towards a foundation for her brother prior to this, because I was a caring friend and wanted to show her I cared. I put my heart out on his foundation page telling her how much I cared for her and her family and that even though I was having financial problems during that time that put money towards a great cause. I have been taught to forgive and forget. So for this quote I forgive this person and I will forget what they missed out on. Because Ella is a angel sent from heaven. We are grateful for all the love and support we have had during all the hard times we have been through and are grateful for all that helped us. I may have cried a few times over that friendship, but I have had more smiles than anything from it. Because I found out who my true friends are along the way of all of the hard times.
Thank you for allowing me to find the person I am, how strong I am and how I can smile my way through all the hard times, and a little tear along with it.
Monday, January 21, 2013
Martin Luther King Jr Day NO SCHOOL
Marian and Brayden are making a cool car out of a cardboard box. They are having quite a fun time doing it!
Glitter Toes
My awesome husband bought me a professional kit to do Glitter Toes, I can even do Glitter Nails for the winter. I have about 30 different colors to choose from. They stay on anywhere from 6 to 8 weeks! If you are interested email me at angelad@mjdwebsolutions.com and we can set up an appointment. I can even do parties. The host will get a free Glitter Toe set for hosting the party, email for prices.
Updated post of pictures!
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| Matt and Ella New Years Eve 2012 |
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| Ella and I watching a movie together 6 months |
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| Marian's Castle project for school 6th Grade. |
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| This is what happens when you all squeeze into a picture. New years eve 2012 |
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| Rescued cute Molly! |
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| Bray and Oliver hanging out |
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| First thing Brayden does is go for the PIES! Yum | ! |
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| Having fun at his cousins |
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| Christmas 2012 Silly faces |
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| Ella hanging out with Grandma! 2013 6 months! |
6 month Ella and 2 year old Brayden
This morning we had our wellness visits for Ella and Brayden. The doctor started off with Brayden (he was the grumpiest one) Good thing they both have a great doctor or he wouldn't have been all smiles at the end of the appointment. Brayden weighed in at 27 pounds, I cant believe how fast my little boy has grown. He is in the 66% of height. Turns out that Brayden also has a small heart murmur but nothing to be concerned about. He is healthy as healthy can be. No shots this time for Brayden!
Next was Ella, by the time it was her turn she turned into the grumpy one. She didnt want the doctor to touch her. She would keep hiding her face in my jacket, thinking the doctor wouldnt find her. Than she would smile like "oopsie I was found" Silly Ella you can try to hide but we will find you. Ella did great she now weighs in at 14.9lbs 26 1/2 inches long and her head measures at 17 inches around. Ella was put on an antibiotic for a sinus infection, but other than that she also was checked out great. Doctor said she can now eat anything we eat but honey and Hot dogs. So we are going to try it out and see if she wants to eat what we eat of course blended in the food processor. Ella was unlucky and had to have her flu shot, tetanus and 2 others. I dont like to give her too many shots but it is helpful for her to have a flu shot, now that she can finally have one.
Marian had the day off of school, I have to give her a HIGH 5 for all she does for us. She helps us out so much with Brayden, around the house and we are so proud of her getting all straight A's every year! She loves school so much, she is already getting excited for middle school. She talks about going to middle school all the time and how excited she is to go to middle school with all her friends. I wish she would go back a great and not make us look so old. :( But I am proud of her and her accomplishments. I know she will go far in schooling with how great she is at it and how dedicated she is to her education. Its great to hear her talk about how shes going to go to college at the U of U. She cant decided what she wants to be yet, but I remember when she was younger about 5 and was always talking about becoming a detective. I remember when I was in elementary and I really wanted to become a fire fighter. Now I get to stay home and watch my 3 kids grow up. Its funny how things change over the years.
Well, this Friday we will have a follow up Echo scan and see the heart surgeon from after heart surgery. Than I oddly enough have ended up with another cyst in my right ovary. So I will be going into a new OBGYN doctor and having this looked at on Friday also to see were we go from here. I will update as soon as possible! Loves to all!
Next was Ella, by the time it was her turn she turned into the grumpy one. She didnt want the doctor to touch her. She would keep hiding her face in my jacket, thinking the doctor wouldnt find her. Than she would smile like "oopsie I was found" Silly Ella you can try to hide but we will find you. Ella did great she now weighs in at 14.9lbs 26 1/2 inches long and her head measures at 17 inches around. Ella was put on an antibiotic for a sinus infection, but other than that she also was checked out great. Doctor said she can now eat anything we eat but honey and Hot dogs. So we are going to try it out and see if she wants to eat what we eat of course blended in the food processor. Ella was unlucky and had to have her flu shot, tetanus and 2 others. I dont like to give her too many shots but it is helpful for her to have a flu shot, now that she can finally have one.
Marian had the day off of school, I have to give her a HIGH 5 for all she does for us. She helps us out so much with Brayden, around the house and we are so proud of her getting all straight A's every year! She loves school so much, she is already getting excited for middle school. She talks about going to middle school all the time and how excited she is to go to middle school with all her friends. I wish she would go back a great and not make us look so old. :( But I am proud of her and her accomplishments. I know she will go far in schooling with how great she is at it and how dedicated she is to her education. Its great to hear her talk about how shes going to go to college at the U of U. She cant decided what she wants to be yet, but I remember when she was younger about 5 and was always talking about becoming a detective. I remember when I was in elementary and I really wanted to become a fire fighter. Now I get to stay home and watch my 3 kids grow up. Its funny how things change over the years.
Well, this Friday we will have a follow up Echo scan and see the heart surgeon from after heart surgery. Than I oddly enough have ended up with another cyst in my right ovary. So I will be going into a new OBGYN doctor and having this looked at on Friday also to see were we go from here. I will update as soon as possible! Loves to all!
Amplatzer ID Card
Over the weekend we received a card in the mail for Ella, as odd as it sounds I had no clue what it was. So I decided to call the phone number on it today and I this is were I learned something new........
Apparently we were suppose to be told in the hospital and was suppose to be given an temporary card to carry around for anytime Ella has anything done X-ray, MRI, CT Scan or even to have on us to go to an airport through security. The device that was placed in Ella's PDA is called an Amplatzer Occluders (AGA Device) This device will set off anything that can only handle a certain amount of metal. So say we go to the airport and we forget the card, the airport might think Ella is trying to take something on the airplane that is not acceptable.
Thank goodness we received this card in the mail because the hospital is not so good about giving us information that is useful.
Apparently we were suppose to be told in the hospital and was suppose to be given an temporary card to carry around for anytime Ella has anything done X-ray, MRI, CT Scan or even to have on us to go to an airport through security. The device that was placed in Ella's PDA is called an Amplatzer Occluders (AGA Device) This device will set off anything that can only handle a certain amount of metal. So say we go to the airport and we forget the card, the airport might think Ella is trying to take something on the airplane that is not acceptable.
Thank goodness we received this card in the mail because the hospital is not so good about giving us information that is useful.
Monday, January 14, 2013
Orthopetic appointment
Today went and the orthopedic surgeon for Ella's 6 month check up from her undeveloped hip. They did an X-ray and everything came back great, doctor would like to follow up in 1 year. She said she cant believe how much Ella has improved over the last 3 months. Next I took all three kids to the pediatrician Marian caught a virus while she was on winter break, Brayden has a sinus infection (not contagious) put on an antibiotic and Ella was sent for yet another X-ray of her chest to rule out pneumonia. Doctor measured Ella's head to make sure she wasn't having symptoms of fluid pressure in her brain, everything checked out ok as far as the outside of the shunt. Ella weighed in at 14.5lbs, a week ago she was 13.4lbs. YAY gaining weight finally!!!! Both doctors mentioned that Ella is too big for her car seat, so we are going to try and get an convertible seat asap. End result Ella has a virus in her lungs bronchitis. We wait for a few more days if things dont clear up we will have to go visit the doctor again. All in all we received ok, good and wonderful news today!!!
Friday, January 11, 2013
UPDATE
Ella has been doing really well the last few days, than all the sudden today she has started a fever again. So we will sit and see what happens over the next few hours. So far she is doing good, shes not too fussy. But if she starts being really fussy than we will have to go into the hospital to be checked out. Doctor said she could have started teething because everything she grabs she is chewing on. But it wouldnt explain the fevers and fussiness. Could again be related to an infection in her shunt, but the doctor said its very unlikely that it is that. But we would want to get it checked in case if she starts fussing a lot.
Improvements/learning- Ella is really trying hard to sit up by herself. She can get herself to sit up and than she falls over. It impresses me that she has even started trying to sit up by herself since she is 2-3 month delay.
She started eating wheat cereal and sweet potatoes this week. She loves them, she scarfs them down.
Today she was watching me eat half of a chocolate muffin and she couldnt take her eyes off me. So I decided to take a very small piece of the chocolate and let her try it. She was in love, if she could have ate the whole muffin I am sure she would have. I am starting to think we really need to get a baby bullet, so she can eat what we are eating. I think she would really like that.
Shes also rolling a lot, in the mornings she will roll over to Matt and start hitting/touching his face to get him to wake up. Its such a great feeling to wake up to your baby.
Ella has really started to enjoy playing with toys, even though her big brother thinks they belong to him and he takes off with them from the moment she gets them.
Her favorite show is Mickey Mouse, she is glued to it. She has been watching Brayden and she now cries or gets really fussy when the show ends. Its kinda funny to watch both of them and watch them get really upset when the end is close. I cant believe my 6 month old is already glued to the TV. I am just glad its a good friendly kid show. :)
Other than that we have just been trying to keep ourselves warm and out of the snow.
Hoping everyone is having a great year so far. Loves to everyone!
Improvements/learning- Ella is really trying hard to sit up by herself. She can get herself to sit up and than she falls over. It impresses me that she has even started trying to sit up by herself since she is 2-3 month delay.
She started eating wheat cereal and sweet potatoes this week. She loves them, she scarfs them down.
Today she was watching me eat half of a chocolate muffin and she couldnt take her eyes off me. So I decided to take a very small piece of the chocolate and let her try it. She was in love, if she could have ate the whole muffin I am sure she would have. I am starting to think we really need to get a baby bullet, so she can eat what we are eating. I think she would really like that.
Shes also rolling a lot, in the mornings she will roll over to Matt and start hitting/touching his face to get him to wake up. Its such a great feeling to wake up to your baby.
Ella has really started to enjoy playing with toys, even though her big brother thinks they belong to him and he takes off with them from the moment she gets them.
Her favorite show is Mickey Mouse, she is glued to it. She has been watching Brayden and she now cries or gets really fussy when the show ends. Its kinda funny to watch both of them and watch them get really upset when the end is close. I cant believe my 6 month old is already glued to the TV. I am just glad its a good friendly kid show. :)
Other than that we have just been trying to keep ourselves warm and out of the snow.
Hoping everyone is having a great year so far. Loves to everyone!
Sunday, January 6, 2013
2013 and our luck isnt better ARG!
Welcome to 2013!!!! We were hoping for the best and thinking that we wouldnt have to face anything hard for a while, well our luck wasn't as good as we hoped.
Ella developed a fever yesterday and has been around the same temp since. She has also been urinating more than usual, we have had to change her diaper every 1/2 hour to hour her diapers have been filling up really fast. She also has had a little bit of congestion, and even started spitting up (she never spits up) So I talked to a on call doctor today and he was very concerned. He sent us in to kids care to be checked. Ella and I arrived and waited for almost 2 hours to be seen. They weighed Ella at 13 pounds 24 1/2 inches long. The doctor looked her over and she seemed great just looking at her. She did a cath sample, which came back negative, she also did a long metal part with a swab on it up her nose (ouchie) to test for a virus. She said that Ella has a virus. She also suspects that she may have an infection in her shunt. I of course ask what happens if she has one and what they will do to fix the infection. I should just not open myself up because than I leave crying.
If Ella's temp doesnt go down in the next day or two and she becomes more fussy than she already is, spitting up more. Than I will have to take her into the emergency room at Primary Children's. They will do a CT scan of her brain and check for the infection. If it is positive they will admit her, give her a high dose of IV antibiotics, take her into surgery remove the shunt, place a new one in but leave it out and not put it all the way through her body like the one she has now. We will stay in the hospital till the infection has cleared and a doctor has okay'd it to go back into surgery and put the shunt back in place. During all of this Ella would be admitted to the hospital and wouldnt be able to go home.
I knew we may have problems down the road with the shunt. But 2 months after we had it inserted? Really??
So we are going to continue to watch Ella as we wait for the results of the virus test to come back and if we notice anything to take her in to the hospital.
It feels like we get back to normal and than boom we are back to square one. I dont understand why things have to go the way they do. I hope the doctor is wrong and Ella wont have to suffer yet again. I hate seeing her suffer or any of my children to suffer. Needing lots of prayers and hopefully we will get past this without having to have any sort of hospital stays.
Ella developed a fever yesterday and has been around the same temp since. She has also been urinating more than usual, we have had to change her diaper every 1/2 hour to hour her diapers have been filling up really fast. She also has had a little bit of congestion, and even started spitting up (she never spits up) So I talked to a on call doctor today and he was very concerned. He sent us in to kids care to be checked. Ella and I arrived and waited for almost 2 hours to be seen. They weighed Ella at 13 pounds 24 1/2 inches long. The doctor looked her over and she seemed great just looking at her. She did a cath sample, which came back negative, she also did a long metal part with a swab on it up her nose (ouchie) to test for a virus. She said that Ella has a virus. She also suspects that she may have an infection in her shunt. I of course ask what happens if she has one and what they will do to fix the infection. I should just not open myself up because than I leave crying.
If Ella's temp doesnt go down in the next day or two and she becomes more fussy than she already is, spitting up more. Than I will have to take her into the emergency room at Primary Children's. They will do a CT scan of her brain and check for the infection. If it is positive they will admit her, give her a high dose of IV antibiotics, take her into surgery remove the shunt, place a new one in but leave it out and not put it all the way through her body like the one she has now. We will stay in the hospital till the infection has cleared and a doctor has okay'd it to go back into surgery and put the shunt back in place. During all of this Ella would be admitted to the hospital and wouldnt be able to go home.
I knew we may have problems down the road with the shunt. But 2 months after we had it inserted? Really??
So we are going to continue to watch Ella as we wait for the results of the virus test to come back and if we notice anything to take her in to the hospital.
It feels like we get back to normal and than boom we are back to square one. I dont understand why things have to go the way they do. I hope the doctor is wrong and Ella wont have to suffer yet again. I hate seeing her suffer or any of my children to suffer. Needing lots of prayers and hopefully we will get past this without having to have any sort of hospital stays.
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