Much needed update

I havent updated since September. I cant believe its been that long. I had a friend say that she hasnt seen a update for a long time, it reminded me that I should update. So much has gone on since Sept. Ella has been having some episodes since August 2013. She has days were she vomits, pale face, off balance when walking, fussy and her veins in her face are prominent. We had been to the ER about 5 times since than, every time we went they would send us home saying it was a virus. This last time in Feb I tried telling the resident what was going on and he refused to listen to me, he talked over me. I asked for advice on a FB group called "Dandy Walker Parents" I had a sweet lady tell me that I should look back at the CT scans and see what they said. Lone and behold it said that Ella had slit like ventricles. I was so upset that immediately wrote a email to the doctor. He suggested getting Ella into him ASAP. That week we got her in he said that he thought that she might have a over drainage in her shunt. We decided that we would go into surgery and check things out. The next week we went into surgery, the doctor put in a drain that came out of her brain and drained into a sack. She was hooked up to this for 3 days. She could not move at all if she did I had to call the nurse to have it adjusted. It was pretty hard for her to sit in one spot. We than went into surgery again and placed a shunt on the other side of her head. It was the hardest thing I have ever had to face. I watched her be put to sleep and than wake up out of it. She was in so much pain. Seeing her like this broke my heart. Why her? Why does she have to go through this? Why cant we have a cure for hydrocephalus?  Ella is very strong and she always have a smile on her face no matter what she has to go through. We were released and sent home. A few days later I decided to look at the CT that was done after surgery come to find out she has a small hemorrhage on one of her ventricles. My question is why did they send her home if she has this? I called the doctor and they said it could go away on its own or it could bleed out. I am praying to Jesus that it will be stopped and she will be okay. Today she woke up off balance when walking, and fussy. I am really watching her hoping that she is okay. I feel really bad that Ella will always struggle with shunt problems. But she has a super support system and I know in my heart that she will be okay. We will work through it together.
I am going to try to be better about doing updates on Ella. I will write again soon. Here is a few pictures from our surgery visit.